Kaylee Gommel's fight against Neuroblastoma. This is her Road to Recovery!

Kaylee Lost her 1st Tooth!

Kaylee had VERY big news yesterday when I came home from work…she lost her first tooth!  She came running across the gym to tell Jamie when he picked Kaylee and Kyle up from school too!  But, she didn’t have the tooth to put under her pillow because she thinks she swallowed it :)   This news prompted LOTS of phone calls…to Grandma and Papa through the Woods, Grandma and Papa with the Trailer, Uncle Tom, Aunt Lynda, Aunt Jamie, Aunt Cherie…she was so thrilled to share her special news :)   So last night before bed, she wrote a note to the Tooth Fairy to explain that she did not have her tooth because she swallowed it, and I told her the Tooth Fairy would be just fine with that.

So that was our thrilling news for the last week.  We have not heard the results from her CT scan and Echocardiogram last week, but we are going on the assumption that no news is good news.  We will see Nurse Holly today for Kaylee’s bone marrow biopsy and MIBG injection, so she will let us know the results today.  Kaylee did a great job with the CT scan last week, drinking lots of grape flavored water an hour before the scan.  And the echocardiogram was quick and easy.  Kaylee fell asleep in the car on the way home, since she was up and out of the house early for her scans.

Then Tuesday night was the first PSR (Parish School of Religion) class for both Kaylee and Kyle.  They both liked their teachers and have a few friends in their classes.   Then I picked Kyle up early to go to the high school for a band/orchestra instrument demonstration night.  Before Tuesday night, Kyle wanted to play the saxophone, but after trying out the trumpet and trombone, he chose the trumpet.  One of the band directors was very impressed by Kyle’s ease of blowing into the trumpet mouthpiece!   So trumpet it will be!

Thursday, Kyle had another physical therapy session with Miss Tobi.  His knee is still coming along well, but since he is not able to run and jump yet, we will continue to schedule the therapy appointments every other week.  Kyle will continue to do some exercises at home to maintain the progress he has made so far.

Friday evening, Jamie started feeling some pain and tightness in his chest, so we made a trip to the Hillcrest ER.  Thankfully, the EKG, chest scan, and blood work all came back normal, signifying a healthy heart.  The ER doctor (and the nurse practitioner at the doctor’s office yesterday) feel that it was probably acid reflux.  With the heart history on his side of the family, we don’t take chest pains lightly.  Several of the nurses and doctors said that it was good that he came to get it checked out.  You just never know what symptoms your heart may present.  So 4 hours later, we came home with a sigh of relief :)

Saturday morning, Kyle and I went to Cub Scout camp with a few other boys from his pack.  It was a busy day, filled with archery, BB shooting, fire building, geocaching with GPS units.  While Kyle and I were at camp, Jamie and Kaylee went to the picnic for the Cleveland Clinic oncology department.  Kaylee had a great time and saw lots of doctors and nurses :)   She played on the playground and from the pictures I saw, was full of smiles all day long :)

So in just about an hour or so, Kaylee, Jamie, and I will be heading down to Cleveland Clinic for Kaylee’s bone marrow biopsy and MIBG injection.  To say that Jamie and I are anxious would be an understatement.  We are all optimistic about the outcome, but it’s hard not to be nervous.  Kaylee is convinced that there are no blue cells left, and we believe her!

So thank you for all the thoughts and prayers for Kaylee and our family.  Please keep your fingers crossed that today goes smoothly and brings back some clear results!  We will keep you posted as soon as we hear anything!  Hugs and kisses are coming your way!

Comments on: "Kaylee Lost her 1st Tooth!" (2)

  1. Jacqui Rancich Bongiovanni said:

    Fingers are crossed for the big appointment today! Love hearing all the stories about the family. :)

  2. Mary Chamberlain said:

    All my fingers and toes have been crossed.

    Kyle you will have to one day be in the OSU marching band! The Best Darn Band In The Land!!!!!! O-H-I-O

    Kaylee – I too had to write the toothfairy a note when I swallowed a loose tooth!

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Connecting to %s

Follow

Get every new post delivered to your Inbox.