More Great News!

I received a call from Dr. Levien yesterday afternoon with more good news.  Kaylee’s bone marrow biopsies are free of tumor cells too!  As I was talking with Dr. Levien, Jamie called me…he saw a Cleveland Clinic phone number come across his phone, so he wondered who called.  He was not anxious for the news   I talked with Dr. Levien about what the next steps should be and where we go from here.  Dr. Levien is going to consult with Dr. Yanik in Michigan whether we should completely stop the Accutane or continue for a couple of more months.  And we will do scans and biopsies every 3 months for the next year, just to keep an eye on things.  Dr. Levien also said that Kaylee could stop taking Bactrim, which is the antibiotic that she takes each weekend, to protect her lungs.  She has not had chemotherapy for more than one year and has started receiving her immunizations again, so he was comfortable stopping it.  Now, Kaylee only takes one “teeny tiny” pill each night, which is Synthroid for her thyroid.  We may be able to cut that one out as well, after we check her blood levels a few more times to make sure her thyroid levels are stable.

Tomorrow is Jamie’s and my 12th wedding anniversary.  It’s hard to believe that 2 years ago, Kaylee was starting her very first chemotherapy treatment.  We had no idea what the future would bring, and now 2 years later, she is 6 months into remission and feeling great.  For our anniversary, I made Jamie’s favorite dinner, lasagna and garlic bread,  so Kaylee, Kyle and I went to the store to buy all the ingredients.  Of course we had to stop at the bakery to get Kaylee and Kyle their free cookies.  I paused for a moment to watch Kaylee skip down the isles, happy as can be with her cookie   How far she has come in 2 years!

We truly believe that we could not be where we are today without all the support from our family and friends.  Your continuous prayers and positive thoughts have helped us get through these last 2 years.  We can’t thank you enough…thank you, thank you, thank you!  We are sending lots of love and hugs and kisses your way!